Mad For My Middles

October 1, 2015 / Mandy May / Leave a comment

My Middles

Oh, these three. Life is never dull with my middles. I was trying to come up with words that start with “M” to describe them. I thought about words like mischievous and misunderstood. But I think I would do better to think of a list of most likely to do. Most likely to say anything. Most likely to join in the adventure. Most likely to try something new. Most likely to think outside the box. Most likely to speak up. Most likely to help someone in need. Most likely to be ok with who they are. These three are heroes in my book.

Eddy is clearly awesome.

My oldest middle is Eddy. He is 12 now. I have never met a kid so concerned about helping others. If Eddy sees a person in need, he helps. It’s just who he is. It’s not unusual for me to find him running to open doors for people, or carrying things for strangers, or going out of his way to help a little kid in need. He is my biggest helper in taking care of Lu. The two of them have been inseparable since he was born, and when Lu got sick, Eddy took it upon himself to stay by her side. I don’t know what I would do without him. Eddy doesn’t want recognition. He is happy to keep to himself, preferring time spent on his own projects than being with groups of friends. Not that he doesn’t have friends, he just needs time alone to recharge.

Eddy reading to Jimmy.

Besides being a Minecraft junkie, a computer whiz, and just a regular old smart kid, Eddy is an adventurer. He recently joined Civil Air Patrol. The program fits perfectly with Eddy’s thirst for adventure, love for aeronautics, and his desire to serve his community. I love that he is learning leadership skills and has found an activity that is his own.

Marie

Next in line, comes my Marie. She is 8 years old and in the 3rd grade. Marie is my tender hearted, animal loving thespian. When she was 2, she would perform during the 7th inning stretch at baseball games. Most recently, she played the role of The Ace of Spades in Alice in Wonderland Jr. at our local theater. Unfortunately, Marie has a milder form of the same autoimmune disorder that Lu has. We caught hers much earlier and so far have been able to keep her stabilized.

Marie and Lu after the play.

Marie is an awesome sister. She is good at keeping SJ and Jimmy entertained and she is Lu’s sidekick. She knows how to change diapers and feed babies. She can also make a mean cup of tea. Few have the capacity to love others like Marie has.

Do you see this kid? Can you see the mischief in his eyes? SJ is my fun loving, question asking, everything moving all of the time kid. He doesn’t stay still, even when he’s sleeping. He loves trucks, cars, planes, super heroes, and most of all . . . Dirt! If there is a pile of dirt, you will find SJ in it. Last year, he came home so covered in dirt and sand that he infested his bedroom with sand fleas, and that was after we showered him and took his dirty clothes- we think the culprits hid out in SJ’s shoes.

SJ is going to school.

This is the big year that SJ joined Marie on the school bus and headed to the big kid school. I figure the sign SJ’s holding is fair warning. Thankfully, I haven’t received any calls from his teachers yet. The notes home don’t count.

My middles baking a treat.

I mentioned that these kids are heroes in my eyes. They really are. This crew has been through a lot. They know how to love hurting kids that join our family. They know how to encourage a chronically ill sibling. They know how to follow safety plans and how to react in crisis. They know how to have fun and the know how to make me smile after a hard day. My middles are amazing.

Runaway

September 19, 2015September 25, 2015 / Mandy May / 11 Comments

I’ve been a mother for a long time . . . A. Long. Time. There are things I just know after all of these years. I know that each child is different and that you can’t parent them all the same. I learned the hard way that parenting adopted and foster children is a lot different than parenting biological children. I have learned to read my children’s body language and behavior because most of the time behavior is a clue to underlying issues. If we address the issue, the behavior can then be addressed. I am also keenly aware that, as the mother of the home, my attitude sets the tone in the house. I KNOW all of this and I’m usually decent at parenting with this knowledge in mind. Then there was yesterday.

Yesterday was an exhausting day following two overwhelming weeks. September is always a tough month here. All of the kids are getting used to their new school schedules. The month is full of triggers for my kids with PTSD and emotional impairments. Illness runs through the house making its victims miserable but also exacerbating symptoms in my two daughters with autoimmune disorders. Then we add in our normal meetings and appointments plus school meetings and the month is full. This year is tougher because our young adult daughter is staying here while she gets some things settled and we are helping care for her two babies. Yup, I’m just a little stressed. No excuse.

Back to yesterday. Mike, our almost adopted 16 year old, has had a rough week. He is struggling to get back on a school schedule, work through some pretty tough therapy, deal with the stress of his upcoming adoption, manage some serious trauma triggers, and is balancing the heaviest academic load he has ever had. Normally, I try to see things from Mike’s perspective. He’s been through more than any 16 year old I have ever met and he’s an incredible kid. I am extremely proud of him, he has accomplished so much since he has been with us. He is MY SON! But yesterday, after the 5th e-mail from the school, my patience had worn thin. Mike hadn’t really done anything wrong, but he was becoming increasingly agitated, and in the process annoying his teachers and the school staff. These were clues that I needed to step back from the situation and get to the root of what was causing Mike’s agitation. But I wasn’t watching the clues. I was at the end of my rope.

Mike walked in the door as the 3 month old was screaming. Immediately, I began interrogating him. Why was he annoying his teachers? (Foster Parenting 101: Never ask Why.) The argument commenced. Soon, Mike was blaming the whole situation on me and as our voices raised he said something that struck a nerve. I had had it!

“That’s it! Go to your room!” I yelled.

“I’m leaving!” Mike spat back.

“Fine, then leave!”

“Fine, I will!”

“FINE!”

“Mike, you can’t leave. Just go to your room.” I said as I determined to bring my emotions back under control.

“You said I could leave, so I’m leaving.”

“Go To Your Room!” my voice again raised.

Mike walked into his room, threw some clothes in his backpack, and headed toward the door. I again told him to stay, but he was set on leaving. He walked out the door as I stood there seething with anger. I sat and tried to get my emotions under control again. I knew I would have to go after him, but in the state I was in, it would do no good. After about 5 minutes, I walked outside to see where Mike had gone. I saw him walking down the sidewalk with Leo, our 15 year old. I figured Mike would walk it off and as long as he was with Leo, there was nothing to worry about. I would apologize for acting like a crazed lunatic later, when we both had a chance to cool off. I went to give the baby her bottle.

About 20 minutes later, Leo returned to the house alone. Mike told him that he was going to keep walking. Rolling my eyes, I decided it was time to go find my wayward teen. It took a while to get all of the kids set so I could leave, but I was reasonably confident that it wouldn’t be too hard to find him. Wrong again. After an hour of driving around, I went home and started making the necessary calls. I made dinner and waited for the police to show up.

Thankfully, the officer that came is an old friend, so I was able to relax a little as I told the story. We drove around to check a friend’s house and some other areas that Mike might go. Still no luck. The officer came back to our house and made sure that he had a detailed description of what Mike was wearing when he left and then updated dispatch. I went back to watching the little ones and began their bedtime routines while my husband took Lu and Marie driving around to look for our son. Leo printed out a map, estimated how fast Mike was walking, and drew circles around how far Mike could make it every 2 hours. Then he took a bike and rode around, joining the search.

As the hours passed, me heart sank further. I watched out the windows hoping my boy would come home. I thought of the story of The Prodigal Son and understood how the father watched the road every day. Finally, at the little ones’ bedtime, Sergey was able to take over for me so Eddy and I could rejoin the search. We drove around until it was too dark to see. With a heavy weight on my heart, we returned home. I sat at the window and watched some more. I tried hard to push away the frightening thoughts that kept popping into my mind. Five hours had passed, then six, then seven, still no word. I fell asleep.

After midnight, there was a knock on the door. I don’t think I have ever jumped up so quickly. Through the window I could see an officer standing there next to my son. Waves of relief and joy passed over me as I saw my boy standing there in one piece. The officer told me that he had been found walking along a major highway. He was hungry and exhausted and just wanted to come home. Mike had told the officer about some of the bad things that had happened in his past but then told him of our home, how good he has it here, how we love him and take care of him. I thanked the officer as he left and turned to Mike. He looked at me apprehensively, waiting for me to start scolding. I reached for my son with trembling hands, pulled him to me, and held him. He is my son. He is home.

Let’s Play a Game: Pay It Forward

September 18, 2015September 25, 2015 / Mandy May / 5 Comments

Last night, as I was surfing through fellow bloggers’ sites, I came across http://maggiemayq.com and I really liked something she had posted. She came up with the idea to take a Pay It Forward Facebook post and adapt it to blogging. I copied this from her site.

“This world needs as much kindness as it can get. I’m participating in this ‘Pay It Forward’ Initiative:

The first five people that comment on this post with ‘I’m in’ will receive a surprise from me at some point this year (2015), anything – a book, a ticket, something home-grown, homemade, a postcard, any surprise!

There will be no warning and it will happen when the mood comes over me and I find something that I believe would suit you and make you happy. These five people must make the same offer in a blogpost(copy and paste it + link to me), so that we can form a web of connection and of kindness.

Once my first five have commented ‘I’m in’ I will send you an e-mail to get your contact details (so remember to leave your e-mail when leaving your comment).

Remember the act is kindness so only respond if you truly will keep this going and fulfill your end of the bargain.”

So, what do you think? Are you in?

Enjoying the moment

September 17, 2015September 25, 2015 / Mandy May / 3 Comments

“Enjoy the little things in life, for one day you may look back and realize they were the big things.”

Two years ago, our lives changed forever. Our Lu came down with strep throat and suddenly everything changed. Overnight, she went from a straight A Honor Roll student on track to attend a prestigious academic high school to a girl that could barely function, let alone concentrate on schoolwork. Her body has turned on itself and her immune system is attacking her brain. For the first few months we were just trying to get a diagnosis. Finally, we found a specialist that could give us answers. Our Lu has PANDAS, pediatric autoimmune neuropsychiatric disorder associated with strep throat. Thankfully, through a PANDAS parent site, we were directed to a wonderful neurologist that has become a PANDAS expert. But, even with months of treatment, our Lu still could not stabilize. That’s when we learned that she also has Lyme Disease. We are on a big learning curve. I am hoping to share what I am learning, but most of all, I want to say . . .

Find joy!

Look for small moments that make you smile. Hold on to these treasures, because in the end, these are the things that matter.

Our Lu is finding joy. Last autumn, in a desperate search to find anything to help our girl, I contacted a service dog company. Miracles happened, and our daughter was matched with a dog immediately. Noel has been a life line to Lu, even in some very dark and scary places. The two are inseparable. Noel keeps Lu safe and gives her something to feel good about. See, Lu can’t go to school. She can’t be left unattended. She has seizures, memory loss, her eyes have trouble focusing and that’s not the half of it. But Lu is really good at training her Noel. So good, in fact, that we got two more puppies for Lu to train. She may not be able to go to the high school she had heart set on, but she is a darn good dog trainer. Right now, this is where she finds her joy. And watching Lu work magic with these dogs fills my heart to overflowing.

This evening, like most Wednesday evenings, we were at dog training class. Lu had a seizure and collapsed to the floor. Noel jumped into action doing exactly what she has been trained to do. Noel has a vest that she wears in public to identify her as a service dog. We all agree that her vest is really a cape because Noel is a super hero.

Just Keeping On . . . to whom I write

September 15, 2015September 25, 2015 / Mandy May / 6 Comments

I write to parents, to encourage them to keep on, because this parenting thing is hard and we never know what is going to come our way.

I write to new parents that are just starting this adventure, to encourage them to keep on through the sleepless nights and the long days and let go of guilt and just enjoy this time while their little ones are still little.

I write to the parents of children with chronic disorders, to encourage them to keep on fighting for their kiddos, to do what it takes, though the battle is long.

I write to the parents who have adopted their children, and daily fight the monsters of trauma and loss, to encourage them to keep on helping their children to heal and become whole.

I write to the foster parents who are ready to take in a child at a moment’s notice, those that give their love, time, money, and resources to help a child in need, to encourage them to keep on though the road is rough and uncertain.

I write to the host parents of international exchange students who take in teens from a different culture and show them love and give them a family while they are away from everything they have ever known, to keep on loving, learning, and teaching.

I write to the parents of teens in difficult places, who know the feeling of helplessness when their children make decisions that hurt and destroy, to keep on loving through the pain.

I write to the parents of large families, whether biological, adopted, foster, host, or a mixture of any of these, to keep on smiling through the chaos that their lives bring.

I write to share my story so that I might encourage others to keep on, because I’m on the journey too.